Leiomyosarcoma (LMS) is a rare form of cancer that affects about 10 in a million people. There is not a lot of research out there for this cancer and because of that, there is a very strong forum on Facebook for people from all over the world who have LMS to compare treatment notes. LMS is not like breast cancer or prostate cancer where there is a regimented treatment to start with. Everyone is different and everyone’s cancer reacts differently to chemo, radiation, and surgery. It is like playing whack-a-mole. I was diagnosed over 5 years ago. At that time, the survivability ratio for 5 years was 17-23%. Not great. But like I said, everyone is different. There are no blood tests for testing this cancer, like there are for other types of cancer. You just pray the treatment works and get CT scans frequently.
A little over 5 years ago, the LMS FB I belong to, asked a seasoned thriver (someone who has lived greater than 7 years with the disease) to moderate a zoom meeting with newly diagnosed patients. There were four of us at the time volunteering to do the meeting: Hollie, Liz, Maria, and me. Hollie and Liz were the younger two, with Maria and me being the older gals. The four of us were from all over: South Dakota, Oklahoma, Nebraska, and England. We have never met in person. We talked every day or so with each other. Within a year or so, we lost Hollie. It broke our hearts as her two young girls had to bury their mom….and say their goodbyes to her in a hospital over Mother’s Day, of all days. That was a hard blow for our group, to lose Hollie.
The years went on and the three of us (Liz, Maria, and me) went about our lives, fighting our LMS cancer in very different ways. We talked every couple of weeks, but when all three of us could chat online live, we would type up a storm, catching up with not only our treatments and prognosis, but our lives. Liz has been struggling this last year. She was really hoping to make it to her 40th birthday in April. Her parents posted on our LMS FB group yesterday that Liz had died early on St. Patrick’s Day. Her last name was Green, so I think that Liz would have gotten a kick out of that. She was so very funny and so full of life. She travelled from her home in Oklahoma to MD Anderson in Houston for appointments and treatments. Most of us have to do that….travel to where the specialists are. For me, that is the Mayo Clinic in Rochester, MN. Liz really put on the miles this past year especially. I thought for a moment we would finally be able to meet but she left Houston the day I arrived to see my folks last week. My last text to her was to ask when she was leaving Houston to head home. I missed her by about 8 hours. I knew she was not doing well, but I thought she would make that milestone birthday.
So it is down to Maria and me. We are both stable and living life to the fullest for those who can’t. If you get a chance and you are the praying type, say a prayer for Liz….who fought so valiantly. She and Hollie are probably chatting up a storm in heaven right now. If you aren’t the praying type, raise a glass to a wonderful woman who was a true LMS warrior. Slainte, Liz! I will miss you and your wit so very much.